Mia is 6!!

It's hard to believe that 6 years ago today we welcomed Mia Bella into this world and our adventure began but here we are! In the beginning we used to celebrate a week of her life, then a month - each one a milestone for us as we had no guarantee of just how long we had with her. We still don't, as life is never guaranteed, but as weeks turned to months and months to years we kinda forgot the doctor's grim predictions as birthday after birthday proved that Mia's will to live was stronger than anything.

February 10th is usually a big celebration around here with family and friends but today it was just the 3 of us due to the nor'easter that dumped close to 2 feet of snow, canceling the travel plans of Mia's grandparents. Mia's amazing nurse, Rachel and her husband did manage to dig out and come over for some cake.

Even though we've gone from celebrating her birthday from months at a time to the more traditional annual event, Mia Bella continues to inspire and amaze us every day. Her spirit is stronger than ever and her will to live is never ending. Today and every day she teaches us to count our blessings and they are many.

Happy Birthday Mia! 2/10/13

Mia is a Miracle Benefit!!

Now that the whirlwind of the holidays has passed, we have a moment to update everyone on Mia's benefit.
On December 8th, with the help of our friends and family we threw a wonderful party to benefit our little girl, Mia Bella, and the purchase of a handicap mini van to accomodate her growing size! We raised a lot of money and are so close to our goal! I cannot begin to thank enough everyone who donated, whether it was their time, money or both. Thank you thank you thank you!!

Home from school!

Mia had a great day at school today, and a usual she's pretty tired from working so hard.
Here's a nice pic of her new wheel chair. It is amazing how big she has gotten!

Heading off to school

And bundled up tight. A nasty mix of rain and snow this morning.

Mia is a Miracle Benefit December 8th!

Click picture to see it larger!

Mia is a Miracle Benefit!
Saturday December, 8 2012
6pm-9pm
Queen of the Most Holy Rosary Church
Bridgehampton, NY

This is a benefit to raise money to buy Mia a handicap van!

Facebook RSVP/info: Mia is a Miracle event page

Or call 631-324-7581 for more information

Off to school

Here's a pic of Mia getting ready for school the other day! It's getting cold in Boston!

Mia is a Miracle!

It is truly a miracle that our Mia Bella is not only defying what the Doctors had predicted for her but that she living her life to the fullest! We are now facing the challenge of getting a handicapped accessible van. We are turning to our community of family and friends for support once again. Thank you for all you have done for us and continue to do! All our love, Noah, Francesca and Mia Bella

Back Home

A short, but exhaustive and stressful hospital stay is over and we're settling back in to our home. Thanks for everyone that called and visited and sent prayers. As always your love and support keep us going, even at great distance.

Some recent pictures.

Mia's new bed. She outgrew her crib!


Mia at school this past March.


Celebrating Daddy's birthday in March.


Mia's 4th birthday!! (short lived celebration - she ended up in the ER that night unfortunately)


Cake time!